Wednesday, 23 September 2015

Living With Invisible Illness

I don't really talk about this much on my blog but after speaking to Tania (WhenTaniaTalks) at the west midlands blogger meet I feel like I need to get some things off my chest.

Throughout the last few years I have been plagued by things people can not see. I have had IBS since I was a child. I have anxiety. I have depression and now it seems I also have fibromyalgia. Anyone who has a fibro diagnosis will know that actually getting a diagnosis is a huge batlle ... however I am being treated with medication for fibro while they rule out everything else.

I have been called lazy. I have been told its my fault for getting sick. I have been told by a surgeon that I can't possibly be in pain. I have cried too many times in pain for this not to be real, and yet still I feel like I have to prove myself.

Yet, I have met some fabulous people mainly on the internet, who understand. Who dont judge and who just accept and say "I hope you get well soon"

I don't know really where I am going with this post, other than to just say this world needs a bit more compassion. I know I look normal and healthy, but sometimes I need to rest. Sometimes I need to cancel plans and sometimes I just need to sleep, but all I ask is for people to accept that. 

I hope to talk more about this in the future, but for now thats it. I just needed to get it down.


  1. Proud of you beautiful! It's horrible being told it's not real. When you're told it over & over you can start to doubt yourself. I've been had my migraine diagnosis for 1/2 my life, yet I still find myself doubting whether the pain or the seizures are real. They are & I know that, but because I wasn't believed it's easy to feel this way. When other things came along I had times when I wondered if I were imagining it. Even with my new diagnoses I still feel like this. It's a hard thing to live with. Harder than the conditions themselves sometimes. You put it perfectly - all we want is a little compassion. Xx

    Tania | When Tania Talks

  2. Thankyou so much Tania. Its so nice to hear people who have similar experiences and all we want is a little Love in the world. I am not asking people to pity me, I just want some gentle spoonie understanding!!

  3. I also suffer from IBS, anxiety and depression, and it's so difficult because a lot of people do say that it's my fault, or that I should do more to just stop myself from getting sick. They don't understand that it doesn't work like that!! Thank you for writing this post, it's made me feel a lot better knowing I'm not alone in going through this :)


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